fa O18: Iranian Quality Registry of Spinal Cord Injury, Key Considerations for Implementation جراحی مغز و اعصاب Neurosurgery پژوهشي Research --- Open Access, CC-BY-NC <p align="center">لطفاً به چکیده انگلیسی مراجعه شود. </p> Prevalence of spinal cord injury (SCI) in Iran is considerable and developing a national registry is substantial. Registry can be a foundation of efforts for patient care improvement, clinical research facilitation, preventative strategy formulation and policymaking for better support of patients. With respect to long-term and multiple consequents of the lesions that will have a negative impact on patient quality of life, implementation of quality registry would be more appropriate. There are some considerations for this due to the special nature of medical condition, which is SCI, and development objectives. In this paper will be discussed on the key considerations. The study has been performed by discussion groups and brainstorming sessions as well as literature review on international experiences about develop and implement spinal cord registry. Key considerations for implementing the quality registry of SCI are related to defining detailed objectives, inclusion criteria for both traumatic and non-traumatic, methods for case finding according to distribution and movement of individuals across the country, identifying data sources, data registration and clinical assessments standards, processes, controls and auditing, confidentiality and administrative and technical infrastructures. Given the complexities that are available in the nature of injury, care and follow up processes and budget limitations, successful implementation depends on the appropriateness of the defined administrative structure, processes and quality control and registry auditing instructions with regard to key considerations that implied. In addition, the spirit of cooperation related originations and authorities, commitment to the principles of the program, comply with the ethical framework such as confidentiality and using the loop of feedback in the development process of registry are critical success factors for implement it. Spinal Cord Injury, Registry, Implementation Considerations 18 18 http://shefayekhatam.ir/browse.php?a_code=A-10-24-362&slc_lang=fa&sid=1 Zahra Azadmanjir Zahra Azadmanjir 10031947532846005707 10031947532846005707 No a. Health Information Management Department, School of Allied Medical Sciences, Tehran University of Medical Sciences, Tehran, Iran. b. Brain and Spinal Injuries Research Center, Tehran University of Medical Sciences, Tehran, Iran. a. Health Information Management Department, School of Allied Medical Sciences, Tehran University of Medical Sciences, Tehran, Iran. b. Brain and Spinal Injuries Research Center, Tehran University of Medical Sciences, Tehran, Iran. Vafa Rahimi-Movaghar Vafa Rahimi-Movaghar v_rahimi@tums.ac.ir 10031947532846005708 10031947532846005708 Yes Sina Trauma and Surgery Research Center, Sina Hospital, Tehran University of Medical Sciences, Tehran, Iran. Sina Trauma and Surgery Research Center, Sina Hospital, Tehran University of Medical Sciences, Tehran, Iran. Behzad Jazayeri Behzad Jazayeri 10031947532846005709 10031947532846005709 No Sina Trauma and Surgery Research Center, Sina Hospital, Tehran University of Medical Sciences, Tehran, Iran. Sina Trauma and Surgery Research Center, Sina Hospital, Tehran University of Medical Sciences, Tehran, Iran. Mohammad Ghodsi Mohammad Ghodsi 10031947532846005710 10031947532846005710 No Brain and Spinal Injuries Research Center, Tehran University of Medical Sciences, Tehran, Iran. Brain and Spinal Injuries Research Center, Tehran University of Medical Sciences, Tehran, Iran. Mehdi Sharif-Alhoseini Mehdi Sharif-Alhoseini 10031947532846005711 10031947532846005711 No Sina Trauma and Surgery Research Center, Sina Hospital, Tehran University of Medical Sciences, Tehran, Iran. Sina Trauma and Surgery Research Center, Sina Hospital, Tehran University of Medical Sciences, Tehran, Iran. Mohammad-Reza Zarei Mohammad-Reza Zarei 10031947532846005712 10031947532846005712 No Sina Trauma and Surgery Research Center, Sina Hospital, Tehran University of Medical Sciences, Tehran, Iran. Sina Trauma and Surgery Research Center, Sina Hospital, Tehran University of Medical Sciences, Tehran, Iran. Abbas Norouzi Javidan Abbas Norouzi Javidan 10031947532846005713 10031947532846005713 No Brain and Spinal Injuries Research Center, Tehran University of Medical Sciences, Tehran, Iran. Brain and Spinal Injuries Research Center, Tehran University of Medical Sciences, Tehran, Iran. Hassan Emami Razavi Hassan Emami Razavi 10031947532846005714 10031947532846005714 No Brain and Spinal Injuries Research Center, Tehran University of Medical Sciences, Tehran, Iran. Brain and Spinal Injuries Research Center, Tehran University of Medical Sciences, Tehran, Iran.