The Neuroscience Journal of Shefaye Khatam
مجله علوم اعصاب شفای خاتم
Shefaye Khatam
Medical Sciences
http://shefayekhatam.ir
1
admin
2322-1887
2345-4814
10.61186/shefa
fa
jalali
1393
9
1
gregorian
2014
12
1
2
4
online
1
fulltext
fa
O18: Iranian Quality Registry of Spinal Cord Injury, Key Considerations for Implementation
O18: Iranian Quality Registry of Spinal Cord Injury, Key Considerations for Implementation
جراحی مغز و اعصاب
Neurosurgery
پژوهشي
Research --- Open Access, CC-BY-NC
<p align="center">لطفاً به چکیده انگلیسی مراجعه شود. </p>
Prevalence of spinal cord injury (SCI) in Iran is considerable and developing a national registry is substantial. Registry can be a foundation of efforts for patient care improvement, clinical research facilitation, preventative strategy formulation and policymaking for better support of patients. With respect to long-term and multiple consequents of the lesions that will have a negative impact on patient quality of life, implementation of quality registry would be more appropriate. There are some considerations for this due to the special nature of medical condition, which is SCI, and development objectives. In this paper will be discussed on the key considerations. The study has been performed by discussion groups and brainstorming sessions as well as literature review on international experiences about develop and implement spinal cord registry. Key considerations for implementing the quality registry of SCI are related to defining detailed objectives, inclusion criteria for both traumatic and non-traumatic, methods for case finding according to distribution and movement of individuals across the country, identifying data sources, data registration and clinical assessments standards, processes, controls and auditing, confidentiality and administrative and technical infrastructures. Given the complexities that are available in the nature of injury, care and follow up processes and budget limitations, successful implementation depends on the appropriateness of the defined administrative structure, processes and quality control and registry auditing instructions with regard to key considerations that implied. In addition, the spirit of cooperation related originations and authorities, commitment to the principles of the program, comply with the ethical framework such as confidentiality and using the loop of feedback in the development process of registry are critical success factors for implement it.
Spinal Cord Injury, Registry, Implementation Considerations
18
18
http://shefayekhatam.ir/browse.php?a_code=A-10-24-362&slc_lang=fa&sid=1
Zahra
Azadmanjir
Zahra
Azadmanjir
10031947532846005707
10031947532846005707
No
a. Health Information Management Department, School of Allied Medical Sciences, Tehran University of Medical Sciences, Tehran, Iran. b. Brain and Spinal Injuries Research Center, Tehran University of Medical Sciences, Tehran, Iran.
a. Health Information Management Department, School of Allied Medical Sciences, Tehran University of Medical Sciences, Tehran, Iran. b. Brain and Spinal Injuries Research Center, Tehran University of Medical Sciences, Tehran, Iran.
Vafa
Rahimi-Movaghar
Vafa
Rahimi-Movaghar
v_rahimi@tums.ac.ir
10031947532846005708
10031947532846005708
Yes
Sina Trauma and Surgery Research Center, Sina Hospital, Tehran University of Medical Sciences, Tehran, Iran.
Sina Trauma and Surgery Research Center, Sina Hospital, Tehran University of Medical Sciences, Tehran, Iran.
Behzad
Jazayeri
Behzad
Jazayeri
10031947532846005709
10031947532846005709
No
Sina Trauma and Surgery Research Center, Sina Hospital, Tehran University of Medical Sciences, Tehran, Iran.
Sina Trauma and Surgery Research Center, Sina Hospital, Tehran University of Medical Sciences, Tehran, Iran.
Mohammad
Ghodsi
Mohammad
Ghodsi
10031947532846005710
10031947532846005710
No
Brain and Spinal Injuries Research Center, Tehran University of Medical Sciences, Tehran, Iran.
Brain and Spinal Injuries Research Center, Tehran University of Medical Sciences, Tehran, Iran.
Mehdi
Sharif-Alhoseini
Mehdi
Sharif-Alhoseini
10031947532846005711
10031947532846005711
No
Sina Trauma and Surgery Research Center, Sina Hospital, Tehran University of Medical Sciences, Tehran, Iran.
Sina Trauma and Surgery Research Center, Sina Hospital, Tehran University of Medical Sciences, Tehran, Iran.
Mohammad-Reza
Zarei
Mohammad-Reza
Zarei
10031947532846005712
10031947532846005712
No
Sina Trauma and Surgery Research Center, Sina Hospital, Tehran University of Medical Sciences, Tehran, Iran.
Sina Trauma and Surgery Research Center, Sina Hospital, Tehran University of Medical Sciences, Tehran, Iran.
Abbas
Norouzi Javidan
Abbas
Norouzi Javidan
10031947532846005713
10031947532846005713
No
Brain and Spinal Injuries Research Center, Tehran University of Medical Sciences, Tehran, Iran.
Brain and Spinal Injuries Research Center, Tehran University of Medical Sciences, Tehran, Iran.
Hassan
Emami Razavi
Hassan
Emami Razavi
10031947532846005714
10031947532846005714
No
Brain and Spinal Injuries Research Center, Tehran University of Medical Sciences, Tehran, Iran.
Brain and Spinal Injuries Research Center, Tehran University of Medical Sciences, Tehran, Iran.